Improving quality of life and health for patients with HLRCC through providing a platform for patient advocacy initiatives, research, excellent education and networking of caregivers, researchers, patients and their families.

  • News

    News from the HLRCC Alliance.

  • Working Groups

    Coming soon.

  • Publications

    Publications from and in collaboration with the HLRCC Alliance.

  • Supporters and Partners

    Collaborating organizations and initiatives.

Contact Us

If you are a researcher or medical professional interested in learning about or collaborating on HLRCC, please reach out to us!

For HLRCC patients and their relatives, please see our section below: